Sunday, November 6, 2011

Day 18 Gratitude

It was a really good weekend.  Friday night we went to a fundraiser for the Cystic Fibrosis Foundation.  We try to at least attend one fundraiser for CF once a year because my cousin and great friend has two children with CF. 

We grew up miles apart but spent many days of vacation on great adventures.  We grew up and live only about 30 minutes apart now,  but life happens and we still find little time together. 

Her oldest son is 22 yrs old and was diagnosed at around age 12.  So, for a long time now, she has lived carrying this tremendous weight on her shoulders.  When she learned of my son's addiction, she knew about living with constant fear and no control. 

Ours wasn't a club that anyone really wanted to join but we each had someone that we could talk to who understood that tremendous fear that never leaves.  She has carried this for so much longer than I have.  And, that fear had taken it's toll.  I cannot recall seeing her relax.....really relax.

My son is doing so much better.  I am so grateful but know that the war isn't won.  I still know that this battle is one day at a time.  But, each day makes me a little more grateful.  This weekend at the fundraiser I learned that a new drug is on the horizon which deals with THE CURE and not the symptoms.  It is so hopeful. 

I feel like my cousin and I are watching that tiny little snowball start to grow.  At that dinner, I saw my cousin light and happy and most importantly hopeful!!!  It was and is a great gift to watch.  I am so thankful.

Today, I am thankful for all those who have held my hand during my tough times even when they had their own.  I am thankful for the ability to hope.  I am thankful for the possibility for a cure. I pray for continued success with that drug.  I pray that each family facing hardship realizes that it does "take a village."  I pray we are there for each other and learn and love and hold each other up in the low times and dance and celebrate in the good times.  And, I say a prayer for Henry.

1 comment:

Lou said...

The run I did with "my girls" was a fundraiser for CF! Several parents brought their CF children, and had them thank the runners for contributing to the cause. I thought that was really nice.